In the last couple of years, since my ALS diagnosis, I’ve lived two parallel lives. One was the life I’d always been living as a writer in which I devoted my mornings—and often beyond—to writing, followed by taking care of business, running...
It Will Be Hard To Leave
(This post is a day late because yesterday the internet was down!) The last few -weeks have been hellish in this country. We’ve seen the worst of human nature on display, not only in the shooters, but in many of the people responding to the...
Battling Cancer, Living with ALS
My beloved friend Charlene was recently diagnosed with aggressive breast cancer. A number of years ago she underwent a double mastectomy and a hysterectomy because she had the BRCA gene. These operations are known to radically reduce the chances...
Still Here
When I was diagnosed with an untreatable fatal disease two months ago (bulbar-onset ALS), I had the sensation of stepping off a treadmill. There were/are the expected existential thoughts brought on by the imminence of death, but alongside that I...